Providing the best care for a child with Down syndrome

Down syndrome affects each child differently, depending on the type of chromosomal abnormality they have inherited. There are usually distinguishing physical aspects present, such as a small skull, lack of a nose bridge, bulbous eyes, muscular hypotonia, hyper-flexible joints and tendons, shortened fingers and neck, and large tongue. Mentally, children with Down syndrome will fall behind other children of the same age, and may also suffer from ASD and ADHD. Furthermore, they are at greater risk of suffering physical disabilities, including hearing difficulties, a squint, congenital heart defects and hypothyroidism.

Children with Down syndrome are capable of developmental progress as long as their parents support and encourage them properly from early childhood. Infants born with Down syndrome should receive multidisciplinary care from birth, including screening for organ defects, close monitoring of their development, and tailored training, which should begin as soon as the condition is first detected. Monitoring and supporting the development of children with Down syndrome includes keeping an eye on their large and small muscle groups, cognition, speech, social and emotional behavior, and independence. Such training requires a multidisciplinary team consisting of doctors and other professionals, all of whom should advise parents and guardians on how best to support the child’s development.

• Develop your understanding of the condition and be sure not to assign blame. Your continued support and encouragement will be invaluable to your child’s quality of life.
• Bring your child in for regular health screening appointments. Down syndrome usually involves a number of other health disorders, such as cardiovascular issues, problems with the digestive system, hearing difficulties, sight issues and an increased risk of infection and blood disorders.
• Believe in your child’s ability to develop as well as any other child the same age, but be aware that your child’s development may take a little more time. Consult your doctor regularly, and try to encourage your child to be as independent as possible as this will give them the best chance of eventually entering society.
• Care for the child just as you would any other, being careful not to acquiesce to their every demand or give them any more privileges than your other children.
• Provide them with any special assistance they may require, such as enrolling them at a suitable educational institution or enabling them to receive additional support in addition to attending a mainstream school.
• Finally, attend all developmental therapy appointments conducted by a multidisciplinary team of hospital-based experts.

Take the assistance of experts who specialize in providing care for infants with Down syndrome. Such a team should include the following specialists:

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  • Occupational therapists who will prepare the child’s muscles through various physical tasks.
  • Physiotherapists who will support and encourage the use of large muscle groups, helping the child to balance, sit and walk without assistance.
  • Developmental psychologists who will teach the child how to think critically and develop cognitive intelligence.
  • And, speech therapists who will train the child how to communicate effectively.

It is essential that the advice of these experts is strictly adhered to. It is also critical for medical staff to monitor treatment and assess development at every stage.

Modern advances in technology and communication have resulted in parents around the world having a greater understanding of Down syndrome, while screening for the condition can currently be carried out at an early stage of pregnancy.